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Abstract Details

Patterns of Referral to a Comprehensive Epilepsy Program Iin An Urban Tertiary Care Center
Epilepsy/Clinical Neurophysiology (EEG)
P6 - Poster Session 6 (12:00 PM-1:00 PM)

One of the main factors for suboptimal epilepsy care is a delay in referral to an epilepsy center. Some prior studies have indirectly noted that it can take more than 20 years for a patient with epilepsy to see an epileptologist. Epilepsy foundation conducted an informal survey and provided grades to various states with the state of Michigan receiving a grade B+ and an average time to referral (TR) of 7 years.  We aimed to look at TR and associated factors at our urban health center, one of the largest epilepsy centers in Southeast MI and within Detroit metro area.

To identify the duration of referral in patients with epilepsy to a comprehensive epilepsy center.  

We performed a preliminary retrospective chart review of patients who were seen in epilepsy clinic since 2014. Patient charts were reviewed for demographics, types and etiology of epilepsy, onset of epilepsy, age at the time of referral and age at intractability. Results were analyzed using descriptive statistics.

Our cohort has 60 patients (40 females) in preliminary analysis. 72% of the patients were African-American. The mean age of onset of epilepsy was 23.2 years (birth- 56 years). The average duration from onset to being seen at epilepsy center was 11.1 years with mean age at presentation 35.2 years. Two patients were intractable at the time of presentation with unknown age of intractability. The most common seizure type was complex partial seizures seen in 59% of the cohort. Most common etiologies were temporal lobe epilepsy and post-traumatic. 8 patients had received Vagus nerve stimulator.

There is a significant delay of more than 11 years for an epilepsy patient to see a specialist in our referral base. Timely referral can prevent irreversible psychosocial disabilities, morbidity and mortality.


Meghana Kinariwala, MD (Providence Neuroscience Instituite)
Dr. Srinivas has nothing to disclose.
No disclosure on file
Rohit A. Marawar, MD, FAAN (Wayne State University - Detroit Medical Center) Dr. Marawar has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for SK Pharma. The institution of Dr. Marawar has received research support from Catalyst Pharma.