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Abstract Details

Recognizing Health Disparities in Multiple Sclerosis: Experiences and Perspectives of Patients of Diverse Racial and/or Ethnic Background
Multiple Sclerosis
P9 - Poster Session 9 (5:30 PM-6:30 PM)
3-008
Despite the considerable impact of MS on racial/ethnic minority populations, sources suggest insufficient clinician recognition of differences in disease presentation and experience across minority groups that could compromise their care. 

Identify areas of disparate care between patients with multiple sclerosis (MS) of diverse racial/ethnic backgrounds for focus in continuing medical education.

A survey was developed to assess patient perspectives on their diagnosis, management, and interest/participation in medical research. Respondents, recruited through the iConquerMS network, completed the survey in April 2022.

Findings from 94 BIPOC and Hispanic (BIPOC-H) and 48 non-Hispanic White (nHW) individuals were analyzed (45% Black/African American (AA), 34% White, 14% Mixed/Other, 11% Hispanic; 87% female). BIPOC-H patients reported earlier age of symptom onset (54% <30 years vs 33% of nHW; p=0.02). Initial symptoms of blurred/loss of vision (31% vs 23%) or fatigue (14% vs 8%) trended more common among BIPOC-H patients. The BIPOC-H group was more likely to seek immediate care (80% vs 60%, p=0.04) and trended toward more frequent misdiagnosis (28% vs 19%) and longer diagnostic delay (49% vs 42% >1 year).

 

There were no significant differences in initial or current disease modifying therapy between groups, though BIPOC-H patients trended more likely to receive high efficacy agents. Patients of Black/AA or Mixed background (23% or 26% vs 4%; p=0.037) more often changed providers in response to feeling treated unfairly/inadequately. The majority of respondents (64% BIPOC-H, 65% nHW) were interested in clinical trial participation. For BIPOC-H patients, interest was largely related to new treatment access (56%) and helping others of similar backgrounds (60%).

Patient racial/ethnic background may influence MS presentation and contribute to discrepancies in care, particularly early in disease course. Data suggest a need for education on inclusive approaches to MS management to resolve shortfalls in the care of BIPOC-H patients.
Authors/Disclosures
Mitzi Joi Williams, MD, FAAN (Joi Life Wellness Group)
PRESENTER
Dr. Williams has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Biogen Idec. Dr. Williams has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Novartis Pharmaceuticals. Dr. Williams has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for EMD Serono. Dr. Williams has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Genentech. Dr. Williams has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Genzyme. Dr. Williams has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for TG Therapeutics. Dr. Williams has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Alexion. Dr. Williams has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Bristol Myers Squibb. Dr. Williams has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Horizon Therapeutics. Dr. Williams has received personal compensation in the range of $10,000-$49,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Genentech. Dr. Williams has received personal compensation in the range of $10,000-$49,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Novartis. Dr. Williams has received personal compensation in the range of $10,000-$49,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Biogen. Dr. Williams has received personal compensation in the range of $10,000-$49,999 for serving on a Scientific Advisory or Data Safety Monitoring board for EMD Serono. Dr. Williams has received personal compensation in the range of $10,000-$49,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Genzyme. Dr. Williams has received personal compensation in the range of $5,000-$9,999 for serving on a Scientific Advisory or Data Safety Monitoring board for TG Therapeutics. Dr. Williams has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Alexion. Dr. Williams has received personal compensation in the range of $5,000-$9,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Bristol Myers Squibb. Dr. Williams has received personal compensation in the range of $5,000-$9,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Janssen. Dr. Williams has received personal compensation in the range of $10,000-$49,999 for serving on a Speakers Bureau for Biogen Idec. Dr. Williams has received personal compensation in the range of $10,000-$49,999 for serving on a Speakers Bureau for EMD Serono. Dr. Williams has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for Genentech. Dr. Williams has received publishing royalties from a publication relating to health care. Dr. Williams has received publishing royalties from a publication relating to health care. Dr. Williams has a non-compensated relationship as a National Board Member with National MS Society that is relevant to AAN interests or activities.
Stephen Krieger, MD, FAAN (Mount Sinai Dept of Neurology) Dr. Krieger has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Biogen. Dr. Krieger has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for EMD Serono. Dr. Krieger has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Genentech. Dr. Krieger has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Novartis. Dr. Krieger has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for TG Therapeutics. Dr. Krieger has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Sanofi. Dr. Krieger has received personal compensation in the range of $5,000-$9,999 for serving as an Expert Witness for Expert Witness. The institution of Dr. Krieger has received research support from Novartis. The institution of Dr. Krieger has received research support from Bristol Myers Squibb.
Annette Okai, MD, FAAN (North Texas Institute of Neurology and Headache) Dr. Okai has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Alexion. Dr. Okai has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Biogen. Dr. Okai has received personal compensation in the range of $500-$4,999 for serving as a Consultant for BMS. Dr. Okai has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for EMD Serono. Dr. Okai has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Genentech. Dr. Okai has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Novartis. Dr. Okai has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Sanofi Genzyme. Dr. Okai has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for Alexion. Dr. Okai has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for Biogen. Dr. Okai has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for EMD SERONO . Dr. Okai has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for Sanofi Genzyme .
Chloe Gianatasio Chloe Gianatasio has nothing to disclose.
Natalie Goldberg, PhD Dr. Goldberg has nothing to disclose.
Hollie K. Schmidt (Accelerated Cure Project) Ms. Schmidt has received personal compensation for serving as an employee of Accelerated Cure Project for MS.
Sara Loud Ms. Loud has received personal compensation for serving as an employee of Accelerated Cure Project, Inc. The institution of Ms. Loud has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Novartis. The institution of Ms. Loud has received personal compensation in the range of $500-$4,999 for serving as a Consultant for EMD Serono. The institution of Ms. Loud has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Biogen. The institution of Ms. Loud has received personal compensation in the range of $500-$4,999 for serving as a Consultant for BMS. The institution of Ms. Loud has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Sanofi. The institution of Ms. Loud has received research support from National MS Society.
Karen Minnis (Multiple Sclerosis Foundation) Mrs. Minnis has received personal compensation for serving as an employee of Multiple Sclerosis Foundation.
Natalie Blake (Multiple Sclerosis Foundation) Natalie Blake has received personal compensation for serving as an employee of Multiple Sclerosis Foundation, Inc..
Brian Moss Brian Moss has nothing to disclose.