Log In

Forgot Password?
Create New Account

Loading... please wait

Abstract Details

Importance of Bodily Functions in Neuromyelitis Optica Spectrum Disorder from Neurologists’ Perspective
Autoimmune Neurology
P10 - Poster Session 10 (11:45 AM-12:45 PM)
14-018

NMOSD can lead to multiple impairments in several functional systems, causing heterogeneous symptoms. Some might be under-recognized by physicians and of high value for patients.

The study’s aim was to assess the importance given by neurologists to the bodily functions of patients with neuromyelitis optica spectrum disorder (NMOSD).

An online, cross-sectional study was conducted in collaboration with the Spanish Society of Neurology. Neurologists assisting NMOSD patients proactively answered a survey composed of demographic characteristics, professional background, and behavioral traits. Importance of patients’ bodily functions was assessed through the Values of Bodily Functions Questionnaire (VABOF), which covers 13 functions. A stepwise multivariate linear regression analysis was used to determine the association between neurologists’ characteristics and functions’ importance.

A total of 104 neurologists were included [median interquartile range (IQR) age: 34.5 (29.0-44.0) years, 52.9% male, median (IQR) experience managing NMOSD patients: 5.0 (2.9-10.8) years].

Neurologists placed the greatest importance on Speech [mean (SD): 4.3 (2.9)], followed by Thinking and memory [4.4 (3.2)], and Visual function [4.6 (2.4)]. The least prioritized functions were Wakefulness and alertness [8.9 (3.7)], Sexuality [10.7 (2.5)], and Normal skin sensations [11.1 (2.6)].

Importance of functions varied according to age, sex, experience, NMOSD specialization, number of patients, last congresses attendance, attitude towards innovation, care-related regret, and empathy, although general ranking positions were similar. Fewer years of experience and higher empathy were predictors of placing Speech as a prioritized function (p<0.01), whereas last congresses attendance and lower intensity of care-related regrets were predictors of a lower prioritization of Normal skin sensations (p<0.02).

These results highlight the importance given by neurologists to speech, cognition, and visual over other functions. Assessing the physicians’ perspective in this regard might be of importance to undercover which functions are prioritized from their view and to reach an agreement with patients towards a patient-centred care.

Authors/Disclosures
Rocío Gómez, Other (Roche Farma S.A.)
PRESENTER
Ms. Gómez has received personal compensation for serving as an employee of Roche Farma Spain, Medical Department.
Nieves Tellez Nieves Tellez has nothing to disclose.
Marta Aguado Valcarcel Marta Aguado Valcarcel has nothing to disclose.
No disclosure on file
No disclosure on file
Aida Orviz-García, MD (Fundacion Jimenez Diaz) Dr. Orviz-García has nothing to disclose.
Maria Diaz Sanchez Maria Diaz Sanchez has nothing to disclose.
Sabas Boyero Sabas Boyero has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Novartis. Sabas Boyero has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Alexion. Sabas Boyero has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Biogen. Sabas Boyero has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Genzyme. Sabas Boyero has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Biogen. Sabas Boyero has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Roche. Sabas Boyero has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Merck.
No disclosure on file
Jorge Maurino Jorge Maurino has received personal compensation for serving as an employee of Roche Pharma Spain, Medical Department.