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2024 Annual Meeting | S37 - Emerging Therapies in Child Neurology

Wednesday 04/17/24
03:30 PM - 05:30 PM MDT Add To Calendar
Colorado Convention Center | 605
This program will be presented in-person only
This program will be available in the meeting's On Demand product.
Scientific Platform Session
Child Neurology and Developmental Neurology
 A group of abstracts covering a similar topic will be presented in an eight-minute oral format followed by four minutes of question and answer with the author. 
2.00 CME credits

Program Materials Program Evaluations

Event Timeline
03:30 PM - 03:42 PM MDT Abstract 001 - Dietary Vitamin D Supplementation Mitigates Neuroinflammation in a Novel Mouse Model of Cerebral Demyelinating Adrenoleukodystrophy
Keith Van Haren, MD
03:42 PM - 03:54 PM MDT Abstract 002 - Efficacy and Safety of Trofinetide in Patients with Rett Syndrome: A Systematic Review and Meta-analysis
Mohamed Abo Elyazeed Abo Zeid
03:54 PM - 04:06 PM MDT Abstract 003 - Trofinetide for the Treatment of Girls Aged Two to Four Years with Rett Syndrome: Final Results from the Open-label DAFFODIL Study
Alan K. Percy, MD, FAAN
04:06 PM - 04:18 PM MDT Abstract 004 - Genotype-phenotype Correlations and Sex Differences in ZC4H2-associated Rare Disorder (ZARD): Results from the ZARD Natural History Study
Sydney Peters
04:18 PM - 04:30 PM MDT Abstract 005 - Midazolam Versus Ketamine as the First-line Continuous Infusion for Status Epilepticus in Children with Congenital Heart Disease
Sam Javadian
04:30 PM - 04:42 PM MDT Abstract 006 - RAINBOWFISH: Primary Efficacy and Safety Data in Risdiplam-treated Infants with Presymptomatic Spinal Muscular Atrophy (SMA)
Laurent Servais
04:42 PM - 04:54 PM MDT Abstract 007 - Mechanisms of Neurodegeneration and Mini-gene Therapeutic Approach for Charcot-Marie-Tooth Disease Type 4B3
Elizabeth Haley Jacobs
04:54 PM - 05:06 PM MDT Abstract 008 - Assessing Experiences with Trofinetide for Rett Syndrome: Interviews with Caregivers of Patients in Open-label Studies
Kathie M. Bishop, PhD
05:06 PM - 05:18 PM MDT Abstract 009 - Neuroimaging Abnormalities Predict Immunotherapy Responsiveness in Down Syndrome Regression Disorder
Jonathan Santoro, MD
05:18 PM - 05:30 PM MDT Abstract 010 - In-vitro Efficacy and In-vivo Biodistribution Studies of an Antisense Oligonucleotide Targeting Leukoencephalopathy with Brainstem and Spinal Cord Involvement and Lactate Elevation
Manouchehr Amanat
Faculty Disclosures
Ariel Maia Lyons-Warren, MD, PhD Dr. Lyons-Warren has received personal compensation in the range of $0-$499 for serving as a Consultant for Guidepoint. Dr. Lyons-Warren has received personal compensation in the range of $500-$4,999 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for Neurology. The institution of Dr. Lyons-Warren has received research support from NIH.
Jessica Carpenter, MD Dr. Carpenter has nothing to disclose.
Alan K. Percy, MD, FAAN Dr. Percy has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Acadia Pharmaceuticals. Dr. Percy has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Taysha Gene Therapies. Dr. Percy has received personal compensation in the range of $0-$499 for serving as a Consultant for Neurogene. Dr. Percy has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Taysha Gene Therapies. Dr. Percy has received personal compensation in the range of $500-$4,999 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for IOS Press.
Robin Ryther, MD, PhD The institution of Dr. Ryther has received research support from Acadia.
Eric D. Marsh, MD, PhD Dr. Marsh has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Acadia Pharmacuticals. Dr. Marsh has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Stoke Therapeutics. Dr. Marsh has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Acadia Pharmaceuticals. The institution of Dr. Marsh has received research support from NIH. The institution of Dr. Marsh has received research support from Rett Syndrome Research Trust. The institution of Dr. Marsh has received research support from International Rett Syndrome Foundation. The institution of Dr. Marsh has received research support from Eagles Autism Challenge. The institution of Dr. Marsh has received research support from LouLou Foundation. The institution of Dr. Marsh has received research support from International CDKL5 Resarch Foundation. The institution of Dr. Marsh has received research support from Acadia Pharmaceuticals. The institution of Dr. Marsh has received research support from Marinus. The institution of Dr. Marsh has received research support from Stoke Therapeutics. The institution of Dr. Marsh has received research support from Takeda Pharmaceuticals. Dr. Marsh has received personal compensation in the range of $500-$4,999 for serving as a Grant Review with NIH. Dr. Marsh has received personal compensation in the range of $5,000-$9,999 for serving as a Expert Witness with Department of Human Services. Dr. Marsh has received personal compensation in the range of $500-$4,999 for serving as a Speaker with Medscape.
Timothy Feyma, MD Dr. Feyma has received personal compensation in the range of $500-$4,999 for serving as a Consultant for PTC Therapeutics. Dr. Feyma has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for PTC Therapeutics.
David N. Lieberman, MD, PhD Dr. Lieberman has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Acadia Pharmaceuticals. Dr. Lieberman has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Taysha Gene Therapies. Dr. Lieberman has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Neurogene.
Jeffrey Neul, MD, PhD Dr. Neul has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Acadia. Dr. Neul has received personal compensation in the range of $500-$4,999 for serving as a Consultant for GW Pharmaceuticals. Dr. Neul has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Signant Health. Dr. Neul has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Analysis Group. Dr. Neul has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Taysha Gene Therapies. Dr. Neul has received personal compensation in the range of $10,000-$49,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Alcyone. Dr. Neul has received personal compensation in the range of $10,000-$49,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Ovid. Dr. Neul has received personal compensation in the range of $5,000-$9,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Roche. Dr. Neul has stock in LizardBio. The institution of Dr. Neul has received research support from NIH. The institution of Dr. Neul has received research support from Acadia. The institution of Dr. Neul has received research support from GW Pharmaceuticals. The institution of Dr. Neul has received research support from International Rett Syndrome Foundation. The institution of Dr. Neul has received research support from Rett Syndrome Research Trust.
Timothy A. Benke, MD,PhD The institution of Dr. Benke has received research support from NIH, RSRT, IRSF and Children's Hospital Colorado. The institution of Dr. Benke has received research support from Acadia, GW, RSRT, Ovid/Takeda, Marinus. The institution of Dr. Benke has received research support from Acadia, CUREGRI, GRINtherapeutics, GW, IRSF, Marinus, Neurogene, Taysha, Ultragenyx and Zogenix/UCB; .
Daniel Glaze, MD Dr. Glaze has nothing to disclose.
Elizabeth M. Berry-Kravis, MD, PhD The institution of Dr. Berry-Kravis has received research support from NIH. The institution of Dr. Berry-Kravis has received research support from Ionis. The institution of Dr. Berry-Kravis has received research support from Zynerba. The institution of Dr. Berry-Kravis has received research support from Roche. The institution of Dr. Berry-Kravis has received research support from CDC. The institution of Dr. Berry-Kravis has received research support from FRAXA Research Foundation. The institution of Dr. Berry-Kravis has received research support from GeneTx. The institution of Dr. Berry-Kravis has received research support from Angelman Syndrome Foundation. The institution of Dr. Berry-Kravis has received research support from Acadia. The institution of Dr. Berry-Kravis has received research support from Ultragenyx. The institution of Dr. Berry-Kravis has received research support from Anavex. The institution of Dr. Berry-Kravis has received research support from Rett Syndrome Research Trust. The institution of Dr. Berry-Kravis has received research support from Ultragenyx. The institution of Dr. Berry-Kravis has received research support from Mallinckrodt. The institution of Dr. Berry-Kravis has received research support from Together Strong Foundation. The institution of Dr. Berry-Kravis has received research support from Orphazyme. The institution of Dr. Berry-Kravis has received research support from Taysha. The institution of Dr. Berry-Kravis has received research support from Erydel. The institution of Dr. Berry-Kravis has received research support from Tetra. The institution of Dr. Berry-Kravis has received research support from Neuren. The institution of Dr. Berry-Kravis has received research support from FRAXA Research Foundation.
Amitha Ananth, MD Dr. Ananth has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Reata Therapeutics. The institution of Dr. Ananth has received research support from Acadia Pharmaceuticals.
Colleen Marie Buhrfiend, MD Dr. Buhrfiend has nothing to disclose.
Di Di An, PhD Ms. Di An has nothing to disclose.
Dilesh Doshi, PharmD Dr. Doshi has received personal compensation for serving as an employee of Acadia Pharmaceuticals.
Mona Darwish, PhD Dr. Darwish has received personal compensation for serving as an employee of Acadia.
Kathie M. Bishop, PhD Dr. Bishop has received personal compensation for serving as an employee of Acadia Pharmaceuticals, Inc. . Dr. Bishop has received personal compensation in the range of $10,000-$49,999 for serving as an officer or member of the Board of Directors for DTx Pharma. Dr. Bishop has stock in Acadia Pharmaceuticals, Inc..
James Maurice Youakim, MD Dr. Youakim has received personal compensation for serving as an employee of Acadia Pharmaceuticals. Dr. Youakim has stock in Acadia Pharmaceuticals.
Raghav Govindarajan, MD, FAAN Dr. Govindarajan has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for MT pharma. Dr. Govindarajan has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Alexion. Dr. Govindarajan has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Argenx. Dr. Govindarajan has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Catalyst. Dr. Govindarajan has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Roche . Dr. Govindarajan has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Sarepta. Dr. Govindarajan has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Amicus. Dr. Govindarajan has received personal compensation in the range of $10,000-$49,999 for serving on a Speakers Bureau for Alexion. Dr. Govindarajan has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for MT pharma . Dr. Govindarajan has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Catalyst. The institution of Dr. Govindarajan has received research support from Band of Hope . The institution of Dr. Govindarajan has received research support from Alexion. Dr. Govindarajan has received publishing royalties from a publication relating to health care.
Amy Barrett No disclosure on file
Oyebimpe Olayinka-Amao, Other Dr. Olayinka-Amao has received personal compensation for serving as an employee of RTI.
Susan Martin Ms. Martin has received personal compensation for serving as an employee of RTI-HS. Ms. Martin has stock in Pfizer.
John A. Morren, MD, FAAN Dr. Morren has received publishing royalties from a publication relating to health care.
Manouchehr Amanat Mr. Amanat has nothing to disclose.
Christina Nemeth Mertz, PhD Dr. Nemeth Mertz has nothing to disclose.
Ines L. Garofolo, Other Miss Garofolo has received personal compensation for serving as an employee of Kennedy Krieger Institute. Miss Garofolo has received personal compensation in the range of $10,000-$49,999 for serving as a Research Technician with Kennedy Krieger Institute.
Amena Smith Fine, MD, PhD The institution of Dr. Fine has received research support from NIH.
Seyed Ali Fatemi, MD, MBA Dr. Fatemi has received personal compensation in the range of $10,000-$49,999 for serving as an Expert Witness for RCO law. The institution of Dr. Fatemi has received research support from Minoryx. The institution of Dr. Fatemi has received research support from Viking Therapeutics. The institution of Dr. Fatemi has received research support from Swanbio Therapeutics . The institution of Dr. Fatemi has received research support from Autobahn Therapeutics. The institution of Dr. Fatemi has received research support from Nuvelution. The institution of Dr. Fatemi has received research support from NIH. The institution of Dr. Fatemi has received research support from A Cure for Ellie Foundation. The institution of Dr. Fatemi has received research support from Brian's Hope Foundation . Dr. Fatemi has received intellectual property interests from a discovery or technology relating to health care. Dr. Fatemi has a non-compensated relationship as a Director (Board member) with ALDConnect that is relevant to AAN interests or activities.
Efrain D. Salgado, MD No disclosure on file
Jonathan Santoro, MD Dr. Santoro has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for UCB. Dr. Santoro has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Cycle Pharma.
Mellad Khoshnood, MD Dr. Khoshnood has nothing to disclose.
Saba Jafarpour, MD Dr. Jafarpour has nothing to disclose.
Lina Thi Nguyen, RN Mrs. Nguyen has nothing to disclose.
Natalie K. Boyd Ms. Boyd has nothing to disclose.
Benjamin N. Vogel Mr. Vogel has nothing to disclose.
Ryan Kammeyer, MD The institution of Dr. Kammeyer has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Sanofi-Genzyme. Dr. Kammeyer has received personal compensation in the range of $500-$4,999 for serving as an Expert Witness for Ogborn-Mihm Trial Lawyers. The institution of Dr. Kammeyer has received research support from Rocky Mountain Multiple Sclerosis Center.
Lina Patel, Other Dr. Patel has nothing to disclose.
Melanie Manning, MD Dr. Manning has nothing to disclose.
Robyn Ann Filipink, MD The institution of an immediate family member of Dr. Filipink has received research support from NIH . Dr. Filipink has received personal compensation in the range of $0-$499 for serving as a Author with Medlink.
Stephanie Lynn Santoro, MD The institution of Dr. Santoro has received research support from NIH.
Catherine Susan Franklin, MBBS,Other Dr. Franklin has nothing to disclose.
Benita Tamrazi, MD Dr. Tamrazi has nothing to disclose.
Gordon Worley, MD Dr. Worley has nothing to disclose.
Joaquin Espinosa, PhD Dr. Espinosa has received personal compensation in the range of $0-$499 for serving as a Consultant for Biohaven. Dr. Espinosa has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Eli Lilly. Dr. Espinosa has received personal compensation in the range of $5,000-$9,999 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for Taylor and Francis. Dr. Espinosa has received intellectual property interests from a discovery or technology relating to health care.
Michael S. Rafii, MD, PhD Dr. Rafii has received personal compensation in the range of $500-$4,999 for serving as a Consultant for AC Immune. Dr. Rafii has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Keystone Bio. Dr. Rafii has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Alzheon.
Teresa Frohman, PA No disclosure on file
Mohamed Abo Elyazeed Abo Zeid Dr. Abo Zeid has nothing to disclose.
Amr Elrosasy, MD Dr. Elrosasy has nothing to disclose.
Alina Ghazou, MD Miss Ghazou has nothing to disclose.
Elarbi Goufa Mr. Goufa has nothing to disclose.
Nourhan Mohamed Hamed Hassan, III, MD,MBBS Dr. Hassan has nothing to disclose.
Rashad Gamal Mohamed Rashad Mohamed, MD Dr. Mohamed has nothing to disclose.
Ahmed Said Negida, MD, PhD Dr. Negida has nothing to disclose.
Amy Conger No disclosure on file
Laurent Servais Laurent Servais has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Biogen. Laurent Servais has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Roche. Laurent Servais has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Novartis. Laurent Servais has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Astellas. Laurent Servais has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Pfizer. Laurent Servais has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Sarepta. The institution of Laurent Servais has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Evox. Laurent Servais has received personal compensation in the range of $500-$4,999 for serving as a Consultant for PTC. Laurent Servais has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Sysnav. Laurent Servais has received personal compensation in the range of $500-$4,999 for serving as a Consultant for BioHaven. Laurent Servais has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Dyne. Laurent Servais has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Zentech. Laurent Servais has received personal compensation in the range of $500-$4,999 for serving as a Consultant for MitoRx. Laurent Servais has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Lupin. Laurent Servais has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Fibrogen. Laurent Servais has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Alltrana. Laurent Servais has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Illumina. Laurent Servais has received personal compensation in the range of $10,000-$49,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Roche. The institution of Laurent Servais has received research support from Roche. The institution of Laurent Servais has received research support from Novartis. The institution of Laurent Servais has received research support from Biogen. The institution of Laurent Servais has received research support from Zentech. The institution of Laurent Servais has received research support from BioHaven. The institution of Laurent Servais has received research support from PerkinHalmers. The institution of Laurent Servais has received research support from Scholar Rock.
Michelle A. Farrar Michelle A. Farrar has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Biogen. Michelle A. Farrar has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Roche. Michelle A. Farrar has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Novartis. Michelle A. Farrar has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for Biogen. Michelle A. Farrar has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Roche.
Richard S. Finkel, MD, FAAN Dr. Finkel has received personal compensation in the range of $10,000-$49,999 for serving on a Scientific Advisory or Data Safety Monitoring board for AveXis. Dr. Finkel has received personal compensation in the range of $10,000-$49,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Biogen. Dr. Finkel has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Catabasis. Dr. Finkel has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Capricor. Dr. Finkel has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for ReveraGen. Dr. Finkel has received personal compensation in the range of $10,000-$49,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Roche. Dr. Finkel has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Scholar Rock. Dr. Finkel has received personal compensation in the range of $500-$4,999 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for Elsevier. The institution of Dr. Finkel has received research support from AveXis. The institution of Dr. Finkel has received research support from Biogen. The institution of Dr. Finkel has received research support from Capricor. The institution of Dr. Finkel has received research support from Catabasis. The institution of Dr. Finkel has received research support from ReveraGen. The institution of Dr. Finkel has received research support from Roche. The institution of Dr. Finkel has received research support from Scholar Rock. Dr. Finkel has received intellectual property interests from a discovery or technology relating to health care. An immediate family member of Dr. Finkel has received intellectual property interests from a discovery or technology relating to health care. Dr. Finkel has received personal compensation in the range of $0-$499 for serving as a Speaker in workshop with National Academy of Sciences. Dr. Finkel has a non-compensated relationship as a advisor with n-Lorem Foundation that is relevant to AAN interests or activities. Dr. Finkel has a non-compensated relationship as a Board Member with EveryLife Foundation that is relevant to AAN interests or activities.
Dmitry Vlodavets Dmitry Vlodavets has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for AveXis. Dmitry Vlodavets has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Roche . Dmitry Vlodavets has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Roche. Dmitry Vlodavets has received personal compensation in the range of $0-$499 for serving on a Scientific Advisory or Data Safety Monitoring board for Janssen. Dmitry Vlodavets has received personal compensation in the range of $0-$499 for serving on a Speakers Bureau for Novartis. Dmitry Vlodavets has received personal compensation in the range of $0-$499 for serving on a Speakers Bureau for Roche. Dmitry Vlodavets has received personal compensation in the range of $0-$499 for serving on a Speakers Bureau for PTC Therapeutics. Dmitry Vlodavets has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Roche. Dmitry Vlodavets has received personal compensation in the range of $0-$499 for serving on a Speakers Bureau for PTC Therapeutics. Dmitry Vlodavets has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Roche.
Edmar Zanoteli Edmar Zanoteli has nothing to disclose.
Mohammad A. F. Al-Muhaizea, MD Dr. Al-Muhaizea has nothing to disclose.
Alexandra Araujo, MD,PhD Dr. Araujo has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for ROCHE. Dr. Araujo has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for ROCHE. Dr. Araujo has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Roche. Dr. Araujo has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Pfizer. Dr. Araujo has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Sarepta. Dr. Araujo has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Novartis. Dr. Araujo has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Biogen. Dr. Araujo has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for PTC Therapeutics. Dr. Araujo has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Roche. Dr. Araujo has received research support from Roche. Dr. Araujo has received research support from PTC Therapeutics.
Leslie Nelson, PT, MPT, OCS Leslie Nelson, PT, MPT, OCS has received personal compensation for serving as an employee of UT Southwestern Medical Center. Leslie Nelson, PT, MPT, OCS has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Roche. Leslie Nelson, PT, MPT, OCS has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Avexis. Leslie Nelson, PT, MPT, OCS has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Audentes. Leslie Nelson, PT, MPT, OCS has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Biogen, Inc. Leslie Nelson, PT, MPT, OCS has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Scholar Rock.
Ksenija Gorni Dr. Gorni has received personal compensation for serving as an employee of Hoffman La Roche.
Heidemarie Kletzl Heidemarie Kletzl has received personal compensation for serving as an employee of Hoffmann-La Roche.
Laura Palfreeman Laura Palfreeman has received personal compensation for serving as an employee of Roche.
Michael Rabbia Michael Rabbia has received personal compensation for serving as an employee of Roche.
Eleni Gaki, MD Dr. Gaki has received personal compensation for serving as an employee of Roche. Dr. Gaki has received stock or an ownership interest from Roche Products Ltd.
David Summers David Summers has received personal compensation for serving as an employee of Roche. David Summers has stock in Roche.
Paulo Pacheco Fontoura, MD, PhD, FAAN Dr. Fontoura has received personal compensation for serving as an employee of F. Hoffmann La Roche. Dr. Fontoura has stock in Roche Pharmaceuticals.
Enrico Silvio Bertini, MD Dr. Bertini has received personal compensation for serving as an employee of Bambino Gesu' Children's Resesarch Hospital.
Birgit Jaber Birgit Jaber has received personal compensation for serving as an employee of F. Hoffmann-La Roche Ltd. Birgit Jaber has received stock or an ownership interest from F. Hoffmann-La Roche Ltd. Birgit Jaber has received personal compensation in the range of $100,000-$499,999 for serving as a Senior Safety Director with F. Hoffmann-La Roche Ltd.
Peter A. Calabresi, MD, FAAN Dr. Calabresi has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Novartis. Dr. Calabresi has received personal compensation in the range of $5,000-$9,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Lilly. Dr. Calabresi has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Idorsia. An immediate family member of Dr. Calabresi has received personal compensation in the range of $10,000-$49,999 for serving on a Scientific Advisory or Data Safety Monitoring board for MyMD. Dr. Calabresi has received personal compensation in the range of $500-$4,999 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for Myelin Repair Foundation. The institution of Dr. Calabresi has received research support from Genentech. Dr. Calabresi has received publishing royalties from a publication relating to health care. Dr. Calabresi has received personal compensation in the range of $500-$4,999 for serving as a Study Section Member with NIH. Dr. Calabresi has received personal compensation in the range of $500-$4,999 for serving as a Grant reveiwer with Myelin Repair Foundation. Dr. Calabresi has received personal compensation in the range of $500-$4,999 for serving as a Speaker for CME with NYAS. Dr. Calabresi has received personal compensation in the range of $500-$4,999 for serving as a Speaker with Academic CME.
Stephan Zuchner, MD, FAAN Dr. Zuchner has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Applied Therapeutics. The institution of Dr. Zuchner has received research support from Muscular Dystrophy Association. The institution of Dr. Zuchner has received research support from CMT Association. Dr. Zuchner has received intellectual property interests from a discovery or technology relating to health care.
Adriana Rebelo Adriana Rebelo has nothing to disclose.
Matt Danzi Matt Danzi has nothing to disclose.
Mario A. Saporta, MD, PhD, FAAN Dr. Saporta has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for SwanBio. Dr. Saporta has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Pharnext. Dr. Saporta has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Applied Therapeutics.
Elizabeth Haley Jacobs An immediate family member of Ms. Jacobs has received personal compensation for serving as an employee of Frida. The institution of Ms. Jacobs has received research support from National Institutes of Health.
David S. Zee, MD, FAAN Dr. Zee has received personal compensation in the range of $500-$4,999 for serving as an Expert Witness for florida legal. Dr. Zee has received publishing royalties from a publication relating to health care. Dr. Zee has received personal compensation in the range of $500-$4,999 for serving as a lectuer with u of pittsburg physical therapy. Dr. Zee has received personal compensation in the range of $500-$4,999 for serving as a lecturer with johms hopkins CME.
Keith Van Haren, MD Dr. Van Haren has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Viking Therapeutics. Dr. Van Haren has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Bluebirdbio. Dr. Van Haren has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Orpheris. Dr. Van Haren has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Autobahn. Dr. Van Haren has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for PRIME, Inc. The institution of Dr. Van Haren has received research support from Minoryx. The institution of Dr. Van Haren has received research support from bluebirdbio. Dr. Van Haren has a non-compensated relationship as a Board of Directors with ALD Connect that is relevant to AAN interests or activities. Dr. Van Haren has a non-compensated relationship as a Scientific Advisory Board with United Leukodystrophy Foundation that is relevant to AAN interests or activities.
May Han, MD Dr. Han has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Roche. Dr. Han has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Arena Pharmaceuticals.
Esha Kaushal, PhD Dr. Kaushal has nothing to disclose.
Ezzat Hashemi, PhD Dr. Hashemi has nothing to disclose.
Sam Javadian Mr. Javadian has nothing to disclose.
Dana B. Harrar, MD The institution of Dr. Harrar has received research support from NIH. Dr. Harrar has received publishing royalties from a publication relating to health care.
Arnold J. Sansevere, MD Dr. Sansevere has nothing to disclose.
Julia Keenan Ms. Keenan has nothing to disclose.
Katelyn Staso, NP Mrs. Staso has nothing to disclose.
Caroline Conley, NP Ms. Conley has nothing to disclose.
David Edward Horvat, MD Dr. Horvat has nothing to disclose.
Sarah Schlatterer, MD, PhD The institution of Dr. Schlatterer has received research support from Van Metre Foundation.
Shruthi Voleti Ms. Voleti has nothing to disclose.
Yu-Ting Liu Ms. Liu has nothing to disclose.
Christoph J. Schankin, MD The institution of Dr. Schankin has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Lilly. The institution of Dr. Schankin has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Teva. The institution of Dr. Schankin has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Lilly. The institution of Dr. Schankin has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Lundbeck. The institution of Dr. Schankin has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Novartis. The institution of Dr. Schankin has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Teva. The institution of Dr. Schankin has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Grünenthal. The institution of Dr. Schankin has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Lilly. The institution of Dr. Schankin has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Novartis. The institution of Dr. Schankin has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for Teva. The institution of Dr. Schankin has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Lundbeck. Dr. Schankin has stock in Zynnon.
Sydney Peters Ms. Peters has nothing to disclose.
Kristen Sportiello The institution of an immediate family member of Ms. Sportiello has received research support from National Institutes of Health (NIH). An immediate family member of Ms. Sportiello has received personal compensation in the range of $50,000-$99,999 for serving as a Research Assistant with National Institutes of Health (NIH).
Shreya Mandalapu Ms. Mandalapu has nothing to disclose.
Ashlie Nguyen, Other Ms. Nguyen has nothing to disclose.
Ryan Carrier, MD Dr. Carrier has received personal compensation in the range of $500-$4,999 for serving as a Project Stakeholder with TANGO2 Research Foundation .
Carolyn Dickinson, NP Ms. Dickinson has nothing to disclose.
Alexander Paciorkowski, MD The institution of Dr. Paciorkowski has received research support from University of Rochester.
David Bearden, MD Dr. Bearden has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Biogen. Dr. Bearden has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Praxis. Dr. Bearden has received personal compensation in the range of $100,000-$499,999 for serving as an Expert Witness for law firms.